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近日，渐冻症患者、京东前副总裁蔡磊的妻子段睿透露其近况，称蔡磊已经完全没有语言能力了，胳膊、脚、脖子都无法活动，目前仅能吃一点流食。“如果他走了，我会真的很孤独。”
Cai Lei, former vice-president of JD.com and a prominent advocate for amyotrophic lateral sclerosis (ALS) research, has lost all ability to speak or move his limbs, according to a recent update from his wife, Duan Rui. She expressed concerns about loneliness if his condition worsens.
9月25日晚，蔡磊在社媒发文：看到了大家很关切我的现状，确实现在五体瘫软无法言语，压痛、口水、呛咳、吞咽、憋气每天都在折磨，但我还有眼睛和耳朵，请大家放心，我每天依然在带领团队，科研、运营、合作、人事、财务等等大量工作我每天依然通过眼控在高效处理。
In a social media post on Thursday, Cai confirmed his physical decline, noting that paralysis, pain, and difficulty swallowing challenge him daily. However, he emphasized that he remains actively engaged in leading his team via an eye-tracking device, managing research, operations, and collaborations.
蔡磊表示：“宁可与渐冻症战死，也不会面对绝症屈辱等死。”
他还透露，近期刚宣布了过去20个月对外科研资助超过5000万，这背后是上百个科研项目的合作。“奇迹已经发生，一个个之前必然死亡的病友现在活过来，奇迹必将还继续发生，这是一个AI和生命科学即将点燃的时代！”
“I would rather fight ALS to the death than await death in humiliation,” Cai stated. He recently announced over 50 million yuan ($7 million) in research funding distributed in the past 20 months, supporting more than 100 projects. Cai expressed optimism about scientific progress, citing cases of ALS patients who have survived against the odds. “Miracles are happening… this is an era where AI and life sciences will ignite change,” he said.
Cai‘s assistant, Chen, verified that his condition has been stable for months. Though he requires breaks due to fatigue, his cognitive clarity remains undiminished. Using eye-tracking technology, Cai communicates efficiently, typing dozens of words per minute.
蔡磊出生于1978年5月，曾担任京东集团副总裁。2019年，他不幸确诊渐冻症，然而这种罕见病目前无药可医。
Diagnosed with ALS in 2019, Cai has since founded a patient data platform, a genetic database, and philanthropic initiatives, investing tens of millions of yuan into rare disease research.
来源：九派新闻 红星新闻 新周刊 海报新闻
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